J. Andoni Urtizberea
Consultant, Hendaye / Head, Summer School of Myology, Paris
Andoni URTIZBEREA, (MD, MSc), aged 60, is certified in paediatrics and PMR (physical medicine and rehabilitation) from Paris University, France (1983-1987). After graduating in parallel from the Institut d’Etudes Politiques de Paris in 1987, he served many years as Medical Director for the AFM-Telethon and later as Scientific Director of the European Neuromuscular Center (ENMC). He contributed to the establishment of many worldwide networks in myology, an emerging discipline dedicated to muscle and related disorders. He is currently head of the Summer School of Myology of Paris, part-time clinical myologist in Hendaye (south of France) and deputy coordinator of the French Neuromuscular Network (FILNEMUS) in Marseilles. Over the past twenty years, he headed various worldwide educational events dedicated to myology (in France, Russia, Latin America and more recently in the Middle-East). He is a regular visiting professor for the Ministry of Health of Kuwait and a consultant for many pharmas involved in the field. Ideally placed at the intersection of industry, patient advocacy groups and academia, his main objective is to raise more awareness about these rare conditions notably in emerging countries and more specifically in the context of novel cutting-edge therapies.
Institut de Myologie
Salpetriere University Hospital
PARIS - France