Elizabeth Vroom
Chair, World Duchenne Organisation (UPPMD)
Netherlands
Elizabeth Vroom is founder and president of the Duchenne Parent Project Netherlands since 1995 and Chair and co-founder of the World Duchenne Organisation (UPPMD). She is the mother of an adult son with Duchenne Muscular Dystrophy.
Duchenne Parent Project Netherlands funded more than 130 research projects towards the development of viable treatments in Academia and industry around the globe. The organisation is also involved the development of exoskeletons and other technologies for Duchenne Muscular Dystrophy. The World Duchenne Organisation (UPPMD) represents the global community, plays a role in the dissemination of Standards of Care and initiated the World Duchenne Awareness Day.
Organisations
Duchenne Parent Project
Guided by the foundation president Elizabeth Vroom the Duchenne Parent Project in the Netherlands is an organization founded by parents of children wi …
Committees
Extended Committee
Introduction to TACT Annamaria De Luca, as TACT chair, is leading this exciting initiative with the support of the TACT core, nominated committee memb …
Project Ethics Council – PEC
The Project Ethics Council identifies and examines ethical and social aspects of research taking place in the context of TREAT-NMD.
TREAT-NMD Education Committee
The TREAT-NMD Education Committee chair is Annemieke-Aartsma-Rus. Annemieke, along with the members, oversees all TREAT-NMD Education events.
TREAT-NMD Executive Committee
The TREAT-NMD Executive Committee, made up of 9 academic representatives and 4 patient representatives, took over governance of the network in 2012. T …
Country
