Diane Smith-Hoban
Diane Smith-Hoban is the mom to two great boys – Luke is 14 and has UCMD and his brother Christian is 13. She is a social worker by training with an MSW degree from Temple University and has worked extensively in the child welfare system in Philadelphia, mostly as a child advocate representing child victims of abuse and neglect. Most recently, Diane co-taught a class at the University of Pennsylvania Law School helping law, social work and medical students learn how to become effective advocates on behalf of children – hard and intense work but also fun and very rewarding.
Diane has put her child advocacy training to great use as a volunteer for Cure CMD, working to help organize conferences as well as helping with analysis and writing for the Outcome Measures Survey. She looks forward to using her energy for more endeavors and opportunities that work towards building community and furthering the path to treatment for her amazingly wonderful son and all others affected by the CMD’s.
Organisations
Cure CMD

Cure CMD was established in 2008 with a mission to advance research for treatments and a cure for Congenital Muscular Dystrophy (CMD). Cure CMD works …
