UK DM and FSHD Registry Project Manager and Curator
Ben graduated from Northumbria University in 2015 with an MSc in Psychology. He has since worked at the Regional Drug and Therapeutics Centre as an Information Analyst in Prescribing Support and at the NIHR Innovation Observatory as an Evidence Synthesis and Horizon Scanning Specialist. This has provided Ben with extensive experience in working with pharmaceutical companies, identifying new and innovative medicines and therapeutic report writing.
In January 2019, Ben joined the John Walton Muscular Dystrophy Research Centre as the UK Myotonic Dystrophy and FSHD Patient Registry Project Manager and Curator. He is responsible for promoting both registries to a variety of stakeholders, coordinating the registries and any associated research, managing and disseminating communication activities, ensuring that the registries are working towards the best practice in the rare disease community and curating the patient data by liaising with clinicians and patients.
0191 241 8640
Institute for Genetic Medicine,
International Centre for Life,
Newcastle upon Tyne,