Research Program Manager
Anna Ambrosini has a PhD in Pharmacology and Toxicology. After having spent 15 years in research laboratories active in the field of neuroscience, in 2001 she joined the Scientific Office of the Italian Fondazione Telethon, where she currently works as Senior Research Program Manager. Beside the activity of grant management, she is responsible for developing clinical programs in the field of inherited neuromuscular diseases and coordinates the Italian neuromuscular patient Registry, which is based on the alliance between several Italian neuromuscular Patient Organisations and Italian NMD clinical centres.
Since 2004 she has participated in the Executive Committee of the European NeuroMuscular Centre (ENMC), where she represents Fondazione Telethon and the Italian Muscular Dystrophy Association (UILDM), holding the role of Chairperson in the period 2009-2011.
She coordinated the activities of Fondazione Telethon and the Italian NMD group in the TREAT-NMD EU project, and represented the Italian neuromuscular patient Registry by the TREAT-NMD Global Database Oversight Committee (TGDOC). She was deputy chair of the TGDOC Executive board (years 2019-2020), of which she is currently Chair (years 2021-2022).