Working out of the network coordination office the secretariat which is based in Newcaslte University, UK, provides support and coordination for the TREAT-NMD network on a daily basis.
The secretariat facilitates the Executive Committee’s interaction and communication by arranging and hosting the monthly conference calls whilst also ensuring agreed upon action points are readily executed. Guidance is given when sought by the Executive Committee and face to face meeting are arranged.
The IT platform which underpins many of the TREAT-NMD activities is hosted in Newcastle and maintained by the various members of the secretariat. A major part of the platform comes in the form of the TREAT-NMD website which falls under the responsibility of the secretariat for site maintenance, development, development and provision of electronic tools along with the dissemination of content. Each month a newsletter is compiled by members of the secretariat and is sent out from the coordination office.
Funding opportunities to address the sustainability of the network and future projects are indentified and targeted with a number of grant applications regularly submitted.
As Communication Coordinator I am responsible for TREAT-NMDs social media output, its newsletters, its website and answering general enquiries received via the info@treat-nmd mailbox. I also support the TREAT-NMD Global …United Kingdom
Professor Volker Straub was founding joint co-ordinator of TREAT-NMD, and is an executive board member of the World Muscle Society and R&D Director of the North Tees and Hartlepool NHS Foundation …United Kingdom
DMD Programme and TACT Coordinator
Cathy Turner is Duchenne Programme and TACT Coordinator at the John Walton Muscular Dystrophy Research Centre. Cathy has also been responsible for supporting the NeurOmics project with significant involvement in …United Kingdom