Working out of the network coordination office the secretariat which is based in Newcastle University, UK, provides support and coordination for the TREAT-NMD network on a daily basis.
The secretariat facilitates the Executive Committee’s interaction and communication by arranging and hosting the monthly conference calls whilst also ensuring agreed upon action points are readily executed. Guidance is given when sought by the Executive Committee and face to face meeting are arranged.
The IT platform which underpins many of the TREAT-NMD activities is hosted in Newcastle and maintained by the various members of the secretariat. A major part of the platform comes in the form of the TREAT-NMD website which falls under the responsibility of the secretariat for site maintenance, development, development and provision of electronic tools along with the dissemination of content. Each month a newsletter is compiled by members of the secretariat and is sent out from the coordination office.
Funding opportunities to address the sustainability of the network and future projects are identified and targeted with a number of grant applications regularly submitted.
Clare is responsible for the organisation of DMD Educational Masterclasses and related events. She is a member of the TREAT-NMD Secretariat and supports the TREAT-NMD Executive Committee.United Kingdom
Global Registry Support Assistant
Emma has over 17 years progressive career within the civil service, working on multiple projects across many departments. In her most recent role within Natural England, Emma was Lead Adviser …United Kingdom
Universal Registry Platform Project Manager Caroline.Ogden@treat-nmd.com
Caroline has over 17 years’ experience in Project Management for organisations in the public and private sector including Samsung and Honeywell. During this time, she has delivered projects ranging from …United Kingdom
LGMD Core Dataset Project Manager email@example.com
Sonia has a longstanding experience in Project Management for neuromuscular diseases registries. Sonia is a nurse by training, but after 15 years working as a nurse practitioner in different specialities, moved …United Kingdom
DMD Programme and TACT Coordinator firstname.lastname@example.org
Cathy Turner is Duchenne Programme and TACT Coordinator at the John Walton Muscular Dystrophy Research Centre. Cathy has also been responsible for supporting the NeurOmics project with significant involvement in …United Kingdom
Global Registry Enquiries Manager
Helen is the main point of contact for initiatives relating to the TREAT-NMD Global Registries Network. She is also a member of the TGDOC Executive Board and the TREAT-NMD Secretariat.United Kingdom
Paul has previously held senior positions in both private and public sector organisations. Paul is passionate about education and has a strong back-ground in business development and stakeholder engagement. Paul …United Kingdom