STATEMENT ON COVID-19

The COVID-19 outbreak is increasingly impacting countries worldwide, with many undertaking restrictive measures on their citizens to contain the spread of the virus, including recommendations that all those with a rare disease should self-isolate for 12 weeks. As neuromuscular conditions are considered rare diseases, TREAT-NMD highly recommends following the advice of your national authority, and the World Health Organisation. The latest updates from The Association of British Neurologists can be found here, and the latest press release from EURORDIS Rare Diseases Europe can be found here.

TREAT-NMD also recommends that patients, carers and healthcare professionals follow the general advice about Covid-19 and the effect on people with neuromuscular diseases published by the World Muscle Society. We would also like to draw attention to recordings of the World Duchenne Organisation’s weekly online webinars which contain useful tips, advice and recommendations for the Duchenne community.

Please note, any specific individual questions or problems should be discussed with your relevant healthcare professionals.

The TREAT-NMD Network continues to be operational during the COVID-19 outbreak. You can keep up-to-date on our activities through our website and social media channels: sign up to our monthly newsletter here, and follow us on twitter @TREAT_NMD