Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world...
STATEMENT ON COVID-19
The COVID-19 outbreak is increasingly impacting countries worldwide, with many undertaking restrictive measures on their citizens to contain the spread of the virus, including recommendations that all those with a rare disease should self-isolate for 12 weeks. As neuromuscular conditions are considered rare diseases, TREAT-NMD highly recommends following the advice of your national authority, and the World Health Organisation. The latest updates from The Association of British Neurologists can be found here, and the latest press release from EURORDIS Rare Diseases Europe can be found here.
TREAT-NMD also recommends that patients, carers and healthcare professionals follow the general advice about Covid-19 and the effect on people with neuromuscular diseases published by the World Muscle Society. We would also like to draw attention to recordings of the World Duchenne Organisation’s weekly online webinars which contain useful tips, advice and recommendations for the Duchenne community.
Please note, any specific individual questions or problems should be discussed with your relevant healthcare professionals.
The TREAT-NMD Network continues to be operational during the COVID-19 outbreak. You can keep up-to-date on our activities through our website and social media channels: sign up to our monthly newsletter here, and follow us on twitter @TREAT_NMD
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TREAT-NMD Featured Events
Please note this event has been postponed – further updates will be announced soon. We are pleased to announce that applications for the 2020 TREAT-NMD Expert Masterclass in Duchenne muscular dystrophy are now open. The event will take place in Sao Paulo, Brazil on 6th and 7th May 2020 and feature sessions on standards […]
ECRD 2020 will now take place online! This statement from organizers has been released. Please visit the conference website for more information. —————————————————————————- European Joint Programme on Rare Diseases serves as official partners for the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) taking place at the Stockholmsmässan Congress Center in Stockholm, Sweden on […]
The TREAT-NMD Advisory Committee for Therapeutics (TACT) is a unique multi-disciplinary, international group of well recognized academic and industry drug development experts, as well as patients and/or patient representatives. TACT meets twice a year to review and provide guidance on the translation and development path of therapeutics programs in rare neuromuscular diseases with large unmet […]
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