Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world...
2019 TREAT-NMD Conference
The 2019 TREAT-NMD Conference took place in Leiden, The Netherlands, on 9th to 11th December 2019. The conference attracted over 300 delegates including academics, patients and carers, patient advocacy organisations, clinical specialists and Industry. Delegates had the opportunity to:
- Network with partners on key issues and challenges in neuromuscular disease
- Engage with panels of international experts who will inform, stimulate and challenge debate
- Acquire the latest updates on standards of care, outcome measures, patient reviews, and new developments including addressing trial site capacity
The full conference programme can be found here.
More information on the conference will be published in 2020 via our newsletter, Twitter account and on our website.
Read our latest newsletter
TREAT-NMD Newsletter – January 2020
Read our latest TGDOC newsletter
TGDOC Quarterly Newsletter – January 2020
TREAT-NMD Tweets
Don’t miss the chance to make your voice heard! Have your say on the healthcare you receive for your rare disease via the #RareBarometer H-CARE Survey available in 23 languages. Survey closes on 29 February: http://tiny.cc/h-care
Upcoming deadline for new #ENMC workshop applications:
1 March 2020!
https://www.enmc.org/workshops/how-to-apply/step-1-submission-deadlines/
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TREAT-NMD Featured Events
Opportunities
Want to know how you can get involved in the work of the TREAT-NMD Network?
- The next TREAT-NMD Advisory Committee for Therapeutics (TACT) meeting will be on 24th-26th April 2020 in Bari, Italy. We currently have review places available for an academic or industry application at this meeting. If you are interested please go to https://treat-nmd.org/tact-treat-nmd-advisory-committee-for-therapeutics/tact-application-process/
- The DMD Research pages of the website have been updated for 2019. If you are interested in translating the research overview into a specific language or want to update an existing translation, please contact info@treat-nmd.org
- Do you have an article you’d like considered for inclusion in the TREAT-NMD monthly newsletter? Do you have an NMD organisation which you’d like to highlight? Please contact info@treat-nmd.org or complete the online form.
- Do you have an event you’d like to highlight on the TREAT-NMD website? Please complete the online form.
