Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world...
STATEMENT ON COVID-19
The COVID-19 outbreak is increasingly impacting countries worldwide, with many undertaking restrictive measures on their citizens to contain the spread of the virus, including recommendations that all those with a rare disease should self-isolate for 12 weeks. As neuromuscular conditions are considered rare diseases, TREAT-NMD highly recommends following the advice of your national authority, and the World Health Organisation. The latest updates from The Association of British Neurologists can be found here, and the latest press release from EURORDIS Rare Diseases Europe can be found here.
TREAT-NMD also recommends that patients, carers and healthcare professionals follow the general advice about Covid-19 and the effect on people with neuromuscular diseases published by the World Muscle Society. We would also like to draw attention to recordings of the World Duchenne Organisation’s weekly online webinars which contain useful tips, advice and recommendations for the Duchenne community.
Please note, any specific individual questions or problems should be discussed with your relevant healthcare professionals.
The TREAT-NMD Network continues to be operational during the COVID-19 outbreak. You can keep up-to-date on our activities through our website and social media channels: sign up to our monthly newsletter here, and follow us on twitter @TREAT_NMD
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TREAT-NMD Featured Events
Please note this event has been postponed – further updates will be announced soon. We are pleased to announce that applications for the 2020 TREAT-NMD Expert Masterclass in Duchenne muscular dystrophy are now open. The event will take place in Sao Paulo, Brazil on 6th and 7th May 2020 and feature sessions on standards […]
The Jain Foundation Dysferlin conference is the only meeting of its kind and focuses specifically on dysferlin and the related diseases caused by mutations in dysferlin. The Dysferlin conference includes presentations from leading international scientists on the most up to date information (mostly unpublished) regarding the state of dysferlin research, significant time for discussions and […]
Want to know how you can get involved in the work of the TREAT-NMD Network?
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